{"id":174,"date":"2020-07-30T17:31:25","date_gmt":"2020-07-30T21:31:25","guid":{"rendered":"https:\/\/choiceresearchlab.ca\/?page_id=174"},"modified":"2025-09-03T10:35:39","modified_gmt":"2025-09-03T14:35:39","slug":"publications","status":"publish","type":"page","link":"https:\/\/choiceresearchlab.ca\/fr\/publications\/","title":{"rendered":"Select publications"},"content":{"rendered":"
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Nous avons mis en \u00e9vidence quelques publications cl\u00e9s sur chaque domaine majeur de notre recherche. Pour une liste compl\u00e8te des publications, veuillez vous r\u00e9f\u00e9rer au travail de notre \u00e9quipe sur Pub Med trouver \u00e0 ce lien<\/a>Veuillez noter que certaines publications ne sont pas en libre acc\u00e8s ou accessibles gratuitement. <\/p>\n\n\n\n

Prise de d\u00e9cision partag\u00e9e<\/strong><\/p>\n\n\n\n

\u201cI\u2019d like more options!\u201d: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis<\/a>. Pediatric Rheumatology Online Journal.<\/em> K. Toupin-April<\/strong>, I. Gaboury, L. Proulx, A.M. Huber, C.M. Duffy, E.M. Morgan, L.C. Li, E. Stringer, M. Connelly, J.E. Weiss, M. Gibbon, H. Sachs, A. Sivakumar, A. Sirois, E. Sirotich, N. Trehan, N. Abrahams, J.S. Cohen, S. Cavallo, T.E. Hindi, M. Ragusa, F. L\u00e9gar\u00e9, W.B. Brinkman, P.R. Fortin, S. D\u00e9cary, R. Lee, S. Gmuca, G. Paterson, P. Tugwell, J. Stinson.<\/p>\n\n\n\n

People living with chronic pain experience a high prevalence of decision regret in Canada: A pan-Canadian online survey<\/a>. Medical Decision Making.<\/em> F. Naye, Y. Tousignant-Laflamme, M. Sasseville, C. Cachinho, T. G\u00e9rard, K. Toupin-April<\/strong>, O. Dubois, J.S. Paquette, A. LeBlanc, I. Gaboury, M.\u00c8. Poitras, L.C. Li, A.M. Hoens, M.D. Poirier, F. L\u00e9gar\u00e9, S. D\u00e9cary.<\/p>\n\n\n\n

People living with chronic pain in Canada face difficult decisions and decisional conflict concerning their care: Data from the national DECIDE-PAIN survey.<\/a> BMC Primary Care.<\/em> F. Naye, F. L\u00e9gar\u00e9, C. Cachinho, T. G\u00e9rard, K. Toupin-April<\/strong>, M. Sasseville, J.S. Paquette, A. LeBlanc, I. Gaboury, M.E. Poitras, L.C. Li, A.M. Hoens, M.D. Poirier, Y. Tousignant-Laflamme, S. D\u00e9cary.<\/p>\n\n\n\n

Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach<\/a>. Toupin-April K<\/strong>, D\u00e9cary S, de Wit M, et al.  Semin Arthritis Rheum<\/em>. 2021;51(3):593-600.

Development and acceptability of a patient decision aid for pain management in juvenile idiopathic arthritis: the JIA Option Map. The Patient.<\/a> K. Toupin April<\/strong>, A.M. Huber, C.M. Duffy, D. Couchman, L. Proulx, E.M. Morgan, F. Berbatovci, A. Boyd, H. Sachs, A. Sirois, J. Cohen, M. Bisch, A. Sivakumar, <\/strong>M. Ragusa, T. El Hindi, I. Gaboury, L.C. Li, E. Stringer, S. Cavallo, E. Ueffing, M. Gibbon, P.R. Fortin, W. Brinkman, M. Connelly, J.E. Weiss, S. Gmuca, S. D\u00e9cary, P. Tugwell, J. Stinson.

Shared decision-making in gout treatment: a national study of rheumatology provider opinion and practice<\/a>. Singh, J. A., Richards, J. S., Chang, E., Toupin-April, K.<\/strong>, & Barton, J. L. (2021). Clinical rheumatology, 40(2), 693\u2013700. <\/p>\n\n\n\n

OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions.<\/a> J Rheumatol 2019; 46(10):1409-14. K. Toupin April<\/strong>, J. L. Barton, L. Fraenkel, A. Meara, L. C. Li, P. Brooks, M. De Wit, D. Stacey, F. L\u00e9gar\u00e9, B. Shea, A. Lyddiatt, C. Hofstetter, R. Christensen, M. Scholte Voshaar, M. E. Suarez-Almazor, A. Boonen, T. Meade, L. March, J. E. Jull, W. Campbell, R. Alten, S. Karuranga, E. M. Morgan, J. Kaufman, S. Hill, L. J. Maxwell, D. Beaton, Y. El-Miedany, S. Mittoo, S. J. Bartlett, J. A. Singh, P. Tugwell. <\/p>\n\n\n\n

Exploring decision making needs about pain management among adolescents with juvenile idiopathic arthritis and their families: preliminary results from interviews. Arthritis Rheumatol. 2018; 70 (suppl 10). K. Toupin April<\/strong>, J. Stinson, A. M. Huber, C. M. Duffy, I. Gaboury, E. M. Morgan, L. Brosseau, W. Brinkman, L. C. Li, A. Sivakumar, T. El Hindi, J. Gagnon, M. Bisch, J. Cohen, E. Stringer, F. L\u00e9gar\u00e9, L. Proulx, P. R. Fortin, P. Tugwell. <\/p>\n\n\n\n

Toward the development of a core set of outcome Domains to assess shared decision making interventions in rheumatology: results from an OMERACT Delphi survey and consensus meeting. J Rheum 2017<\/a>; 44(10): 1544-1550. K Toupin April<\/strong>, J. Barton, L. Fraenkel, L. C. Li, P. Brooks, M. De Wit, D. Stacey, F. L\u00e9gar\u00e9, A. Meara, B. Shea, A. Lyddiatt, C. Hofstetter, L. Gossec, R. Christensen, M. Scholte Voshaar, M. E. Suarez-Almazor, A. Boonen, T. Meade, L. March, C. Pohl, J. E. Jull, S. Sivarajah, W. Campbell, R. Alten, S. Karuranga, E. Morgan, J. Kaufman, S. Hill, L. J. Maxwell, V. Welch, D. Beaton, Y. El-Miedany, P. Tugwell. <\/p>\n\n\n\n

A Decision Making Needs Assessment of Youth with Juvenile Idiopathic Arthritis and their Caregivers: Preliminary Results from a Narrative Review. J Rheum <\/em>2016; 43(6):1149-1250. K. Toupin April<\/strong>, M. Laporte-Lafreni\u00e8re, G. Galibois, G. Cadieux-Boileau, I. Gaboury, V. Grandpierre, J. Stinson, A. Huber, E. Morgan De Witt, C. Duffy, M. Gibbon, P. Tugwell, L. Brosseau. <\/p>\n\n\n\n

Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Special Interest Group on Shared Decision Making<\/a>. J Rheum<\/em> 2015; 42(12):2442-7. (PMID: 25877502). K. Toupin April<\/strong>, J. Barton, L. Fraenkel, L. Li, V. Grandpierre, F. Guillemin, T. Rader, D. Stacey, F. L\u00e9gar\u00e9, J. Jull, J. Petkovic, M. Scholte Voshaar, V. Welch, A. Lyddiatt, C. Hofstetter, M. De Wit, L. March, T. Meade, R. Christensen, C. Gaujoux-Viala, M.E, Suarez-Almazor, A. Boonen, C. Pohl, R. Martin, P. Tugwell. <\/p>\n\n\n\n

Development and alpha testing of a stepped decision aid for patients considering non-surgical options for knee and hip osteoarthritis management<\/a>. J Rheum 2016; 43(10): 1891-1896. (PMID: 27585691). K. Toupin April<\/strong>, T. Rader, G. Hawker, D. Stacey, A. O\u2019Connor, V. Welch, A. Lyddiatt, J. McGowan, C. Thorne, C. Bennett, J. Pardo Pardo, GA Wells, P. Tugwell. <\/p>\n\n\n\n

Engagement des patients dans la recherche<\/strong><\/p>\n\n\n\n

Proulx, L., Trehan, N., Sirotich, E., Abrahams, N., Sirois, A., Huber, A. M., Duffy, C. M., Morgan, E. M., Cohen, J. S., Gaboury, I., Li, L. C., Tugwell, P., Stinson, J., Toupin April, K.<\/strong>, & The JIA Option Map Group. (2022). Engaging young people with juvenile idiopathic arthritis in shared decision-making research. The Integrated Knowledge Translation Research Network Casebook<\/a>, 6<\/em> (Special issue on children & youth).<\/p>\n\n\n\n

Future directions for patient engagement in research: A participatory workshop with Canadian patient partners and academic researchers<\/a>. Health Research Policy and Systems.<\/em> A.M. Chudyk, R. Stoddard, T.A. Duhamel; Patient Engagement in Research Partners<\/strong>; A.S.H. Schultz.<\/p>\n\n\n\n

Patient engagement partnerships in clinical trials (PEP-CT): protocol for the systematic development and testing of patient partner and investigator decision aids.<\/a> Parry, M., Ceroni, T., Wells, D., Richards, D. P., Toupin-April, K., Ansari, H., Bj\u00f8rnnes, A. K., Burnside, H., Cavallo, S., Day, A., Ellis, A., Feldman, D., Gilron, I., Najam, A., Zulfiqar, Z., & Marlin, S. (2022). BMJ open, 12(2), e060267. <\/p>\n\n\n\n

Five golden rings to measure patient-centered care in rheumatology. Arthritis Care and Research<\/a>, Arthritis Care Res (Hoboken). 2020 Oct;72 Suppl 10(Suppl 10):686-702. S. D\u00e9cary, K. Toupin April<\/strong>, F. L\u00e9gar\u00e9, J.L. Barton.<\/p>\n\n\n\n

Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids<\/a>. The Patient<\/em>. M. Parry, A.K. Bj\u00f8rnnes, K. Toupin April<\/strong>, A. Najam, D. Wells, A. Sivakumar, D.P. Richards, T. Ceroni, M. Park, A.K. Ellis, I. Gilron, S. Marlin. <\/p>\n\n\n\n

Are Patients\u2019 Views Considered when Developing Instruments for Assessing Shared Decision Making Outcomes? A Systematic Review to Inform Rheumatology Practice and Research. J Rheum 2015; 42(7):1263-1348. K. Toupin April<\/strong>, V. Grandpierre, J. Barton, L. Fraenkel, L. Li, D. Stacey, F. L\u00e9gar\u00e9, T. Rader, V. Welch, J. Jull, J. Petkovic, P. Tugwell.<\/p>\n\n\n\n

Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures. <\/a>J Rheum<\/em> 2015; 42(12):2448-59. J. Petkovic, J. Epstein, R. Buchbinder, V. Welch, T. Rader, A. Lyddiatt, K. Toupin April<\/strong>, M. De Wit, J. Barton, C. Flurey, J. Jull, C. Barnabe, A. Sreih, W. Campbell, C. Pohl, M. Tuncay Duruoz, J. Singh, P. Tugwell, F. Guillemin. (2015). <\/p>\n\n\n\n

Arthrite juv\u00e9nile idiopathique<\/strong><\/p>\n\n\n\n

Relationship of fatigue, pain interference, and physical disability in children newly diagnosed with juvenile idiopathic arthritis<\/a>. Arthritis Care & Research.<\/em> N. Choong, M. Batthish, R.A. Berard, G. Ch\u00e9deville, B.M. Feldman, K.M. Houghton, A.M. Huber, S. James, J.P. Proulx-Gauthier, D.G. Rumsey, H. Schmeling, K. Toupin-April<\/strong>, J. Guzman; CAPRI Registry Investigators.<\/p>\n\n\n\n

Defining patient perception of overall well-being and disease activity in the OMERACT Juvenile Idiopathic Arthritis (JIA) core domain set: A report from the JIA working group<\/a>. Seminars in Arthritis and Rheumatism.<\/em> E. Balay-Dustrude, R. Christensen, A. Consolaro, Y. Ingrid Goh, B.S. Gottlieb, B. Horgan, J. Horonjeff, L.J. Maxwell, J. Munro, N. Pan, G. Schultz, J.F. Swart, K. Toupin-April<\/strong>, E.M. Morgan.<\/p>\n\n\n\n

Pratique fond\u00e9e sur les donn\u00e9es scientifiques<\/strong><\/p>\n\n\n\n

Towards consensus in defining and handling contextual factors within rheumatology trials: an initial qualitative study from an OMERACT working group.<\/a> Nielsen, S. M., Uggen Rasmussen, M., Boers, M., A van der Windt, D., de Wit, M., G Woodworth, T., A Flurey, C., Beaton, D., Shea, B., Escorpizo, R., Furst, D. E., Smolen, J. S., Toupin-April, K.<\/strong>, Boonen, A., Voshaar, M., Ellingsen, T., Wells, G. A., Reeves, B. C., March, L., Tugwell, P., \u2026 Christensen, R. (2021). Annals of the rheumatic diseases, 80(2), 242\u2013249.

Ottawa Panel Evidence-Based Clinical Practice Guidelines for Foot Care in the Management of Juvenile Idiopathic Arthritis. Arch Phys Med Rehabil<\/a> <\/em>2016; 97(7):1163-1181. L. Brosseau, K. Toupin April,<\/strong> G. Wells, C. Smith, A. Pugh, J. Stinson, C. Duffy, W. Gifford, D. Moher, C. Sherrington, S. Cavallo, G. De Angelis, L. Loew, P. Rahman, R. Marcotte, J. Taki, J. Bisaillon, J. King, A. Coda, G. Hendry, J. Gauvreau, M. Hayles, K. Hayles, B. Feldman, G., Kenny, J. Li, A. Briggs, R. Martini, D. Feldman, D. Maltais, S. Tupper, S. Bigford, M. Bisch. <\/em><\/p>\n\n\n\n

Ottawa Panel Evidence-Based Clinical Practice Guidelines for Physical Activity in the Management of Juvenile Idiopathic Arthritis<\/a>. Arch Phys Med Rehabil 2017; 98(5):1018-1041. S. Cavallo, L. Brosseau, K. Toupin April<\/strong>, G. A Wells, C. Smith, A. Pugh. P. Rahman, I.C. \u00c0lvarez Gallardo, J.N. Stinson, R. Thomas, S. Ahmed, L. Loew, G. De Angelis, C.M. Duffy, D. Ehrmann Feldman, A. Majnemer, I. Gagnon, D. Maltais, M. E. Mathieu, G. P. Kenny, S. Tupper, K. Whitney-Mahoney, S. Bigford. O<\/em><\/p>\n\n\n\n

Tramadol for osteoarthritis. Cochrane Database of Systematic Reviews, 2019, May 27; Issue 5: CD005522.<\/a> K. Toupin April<\/strong>, J. Bisaillon, V. Welch, L. J. Maxwell, P. J\u00fcni, W. S. Rutjes, E. Husni, J. Vincent, T. El Hindi, G. A. Wells, P. Tugwell. <\/p>\n\n\n\n

The state of research on complementary and alternative health care in pediatric rheumatology. Rheumatic Disease Clinics of North America 2011;37(1):85-94. K. Toupin April<\/strong>, R. Walji.<\/p>\n\n\n\n

Interventions d'autogestion<\/strong><\/p>\n\n\n\n

La version franco-canadienne de l’outil \u00ab OA Go Away \u00bb : Au revoir Arthrose | Comit\u00e9 d’experts pour la r\u00e9daction de la premi\u00e8re version exp\u00e9rimentale de l’outil \u00ab OA Go Away \u00bb<\/a> Comit\u00e9 d’experts pour l’\u00e9valuation de la deuxi\u00e8me version exp\u00e9rimentale de l’outil \u00ab OA Go Away \u00bb. Physiother Can 2018; 70(4): 330-338. L. Brosseau, K. Toupin April<\/strong>, G. Paterson, S. Cavallo, S.M. Shallwani, J.A. Barette, P. Duong, N. Paquet, E.G. Rududura, R. D\u2019Entremont, J. King, L. Poulin, D. Cardinal, L. Loew. <\/p>\n\n\n\n

M\u00e9thodes et mesures<\/strong><\/p>\n\n\n\n

Consensus on the definitions and descriptions of the domains of the OMERACT Core Outcome Set for shared decision making interventions in rheumatology trials<\/a>. Seminars in Arthritis and Rheumatism.<\/em> S. D\u00e9cary, M. de Wit, F. Naye, J.L. Barton, L. Fraenkel, L.C. Li, et al.<\/em>, K. Toupin-April<\/strong>.<\/p>\n\n\n\n

OMERACT Core outcome measurement set for shared decision making in rheumatic and musculoskeletal conditions: A scoping review to identify candidate instruments<\/a>. Seminars in Arthritis and Rheumatism.<\/em> F. Naye, K. Toupin-April<\/strong>, M. de Wit, A. LeBlanc, O. Dubois, A. Boonen, et al.<\/em>, S. D\u00e9cary.<\/p>\n\n\n\n

Validation of the parent global assessment as a health-related quality of life measure in juvenile idiopathic arthritis: Results from ReACCh-Out<\/a>. Oen, K., Toupin-April, K.<\/strong>, Feldman, B. M., Berard, R. A., Duffy, C., Tucker, L. B., Tian, J., Rumsey, D. G., Guzman, J., & ReACCh-Out investigators (2022). Rheumatology (Oxford, England)<\/em>, keac350. Advance online publication.

Traduction franco-canadienne de l\u2019Assessment of Systematic Reviews Revised<\/em> (AMSTAR 2) : validation transculturelle et fid\u00e9lit\u00e9 interjuges.<\/a> Flowers, H., Guitard, P., King, J., Fitzpatrick, E., B\u00e9rub\u00e9, D., Barette, J. A., Cardinal, D., Cavallo, S., O’Neil, J., Charette, M., C\u00f4t\u00e9, L., Gurgel-Juarez, N. C., Toupin-April, K<\/strong>., Shallwani, S. M., Dorion, M., Rahman, P., Potvin-Gilbert, M., Bartolini, V., Lewis, K. B., Martini, R., \u2026 Loew, L. (2022).  Physiotherapy Canada. Physiotherapie Canada<\/em>, 74<\/em>(1), 15\u201324.

Application of Rasch Analysis to the Parent Adherence Report Questionnaire in Juvenile Idiopathic Arthritis<\/a>. Pediatr Rheum <\/em>2016; 14(1):45. K. Toupin April<\/strong>, J. Higgins, D. Ehrmann Feldman. <\/p>\n\n\n\n

Measurement properties of questionnaires assessing complementary and alternative medicine use in pediatrics: a systematic review.<\/a> PloS ONE <\/em>2012;7(6):e39611. K. Toupin April<\/strong>, D. Moher, J. Stinson, A. Byrne, M. White, H. Boon, C.M. Duffy, T. Rader, S. Vohra, P. Tugwell. <\/p>\n\n\n\n

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We have highlighted a few key publications about each major area of our research. For a full list of publications, please refer to our team’s work on Pub Med at this link. Please note that some publications are not open access or accessible for free. Shared decision making \u201cI\u2019d like more options!\u201d: Interviews to exploreLire la suite “Select publications”<\/span><\/a><\/p>","protected":false},"author":172679031,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_crdt_document":"","advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"jetpack_post_was_ever_published":false,"footnotes":""},"class_list":["post-174","page","type-page","status-publish","hentry","entry"],"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/Pc6WUN-2O","jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/pages\/174","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/users\/172679031"}],"replies":[{"embeddable":true,"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/comments?post=174"}],"version-history":[{"count":40,"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/pages\/174\/revisions"}],"predecessor-version":[{"id":1579,"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/pages\/174\/revisions\/1579"}],"wp:attachment":[{"href":"https:\/\/choiceresearchlab.ca\/fr\/wp-json\/wp\/v2\/media?parent=174"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}