Patient partners featured on CBC documentary
We are excited to share that Natasha Trehan and Naomi Abrahams are featured on a CBC documentary about young people living with rheumatic diseases. Natasha Trehan produced the documentary with the support of CBC to highlight the challenges and stigma often faced by young people with rheumatic diseases. Watch this short clip of the documentary that features Natasha and Naomi, how they met, and the importance of patient engagement in research. We appreciate the shout-out to the Choice Research Lab especially since patient partnerships are central to our work!
Poster and video: Putting youth at the centre of knowledge translation
We are proud to present a “Highlighted Poster” at this year’s Alberta SPOR Collaborative Forum. Both Naomi Abrahams and Laurie Proulx are presenting the poster at the year’s forum. In case you missed it, you can check out the poster and short video right here!
We have a new logo!
We are pleased to share our new logo for the Choice Research Lab developed by Natasha Trehan, a patient partner with our team. She has also developed a logo for the JIA Option Map which we hope to share shortly!
Check out the poster presentation “The power of Lived experience: Engaging young people with Juvenile Idiopathic Arthritis in research – a quality improvement project”
Our team of people with lived experience, or patient partners, presented our work at the Canadian Arthritis Research Conference, hosted annually by the Canadian Institutes of Health Research. In case you missed it, you can view our poster to see what we have been up to!
Patient engagement: An integral part of the Choice Research Lab
Partnering with patients has always been an integral part of our work on shared decision making in rheumatology. The patient partners involved in our research wrote an article for the Institute for Musculoskeletal Health and Arthritis (IMHA) newsletter about our work to engage people with lived experience in research and the impact of their contributions. Check out the article and feel free to share any thoughts about what we do and how we can do it better!
Choice Research Lab guests speak on Take a Pain Check podcast
Dr. Karine Toupin April and Laurie Proulx were invited to speak on Take a Pain Check, a podcast that features guests making an impact in health care and the rheumatic disease community. The podcast is hosted by Natasha Trehan (a member of our Patient Advisory Committee) and Trish Peters, who both live with Juvenile Idiopathic Arthritis. Listen to the podcast to learn more!
We want your feedback on a patient decision aid!
Are you a teen or young adult living with Juvenile Idiopathic Arthritis or a parent / caregiver? We want to hear your thoughts on the JIA Option Map, a new app designed to help youth and parents choose ways to manage pain. Learn more by visiting this website!
May 1, 2021
Watch us at the Canadian Arthritis Research Conference!
We presented at the Canadian Arthritis Research Conference in February 2021 and won a special prize for one of the top 8 abstracts! Dr. Karine Toupin April presented at the original research day and lead patient partner and knowledge broker, Laurie Proulx, presented at the conference. Check out the presentation and learn more about the JIA Option Map by listening to the video!
March 1, 2021
We work closely with many organizations including the Canadian Arthritis Patient Alliance, a grass-roots patient group based in Canada. I met with one of their Board members (Laurie Proulx) at the annual Canadian Rheumatology Association meeting in 2019. I am pleased to share the article she wrote about our work!
January 15, 2021